Registry of Li Fraumeni and Li Fraumeni Like Syndromes
Recruiting
Observational Study
Li-Fraumeni Syndrome
Li-Fraumeni-Like Syndrome
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 200 (estimated)
- Sponsor
- Istituto Ortopedico Rizzoli · Other
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About This Trial
ReLF is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different resour…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All patients affected by Li Fraumeni or Li Fraumeni Like syndromes
Exclusion Criteria:
* Any condition unrelated to Li Fraumeni or Li Fraumeni Like syndromes
Contacts