Caregiving Networks Across Disease Context and the Life Course
Recruiting
Observational Study
Inherited Metabolic Disorders
Undiagnosed Diseases
Batten's Disease
Tay Sachs
Diabetes
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 – 100
- Sex
- Any
- Study type
- Observational
- Participants needed
- 2,800 (estimated)
- Sponsor
- National Human Genome Research Institute (NHGRI) · NIH
Who this trial is looking for
This trial is looking for adults who are at least 18 years old and have been a primary caregiver for someone with a long-term illness or disability. They are not accepting caregivers who work for the study organization or anyone who can't make their own decisions. If you can share your experiences, you could be part of this important research.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
Background:
In the U.S., about 53 million informal, unpaid caregivers provide care to a person who is ill, is disabled, or has age-related loss of function. These caregivers may be adult children, spouses, parents, or others. The stress of providing long-term care affects caregivers health and well-being. Researchers want to learn more about this stress and its effects.
Objective:
To learn how …
Trial Locations
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Eligibility Criteria
* INCLUSION CRITERIA:
To be eligible to participate in this study, an individual must meet all of the following criteria:
* Adults aged 18 years and older
* If the Care Recipient is living, they must self-identify as a primary caregiver to the Care Recipient (individual with a chronic medical cond…
Contacts