Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD)

Recruiting Observational Study
Optic Neuritis Transverse Myelitis Acute Disseminated Encephalomyelitis Multiple Sclerosis Neuromyelitis Optica Spectrum Disorder Anti-NMDAR Encephalitis Anti-GAD65 Associated Autoimmune Encephalitis Anti-AMPAR-1/2 Associated Autoimmune Encephalitis Anti-Lgi-1 Associated Autoimmune Encephalitis Anti-CASPR-2 Associated Autoimmune Encephalitis Anti-GABAR-1/2 Associated Autoimmune Encephalitis Onconeuronal Antibody (Hu, Ri, Yo, Amphiphysin, CRMP-5, Ma-1, Ma-2, SOX-1) Associated Autoimmune Encephalitis Hashimoto Encephalitis CNS Vasculitis CNS Sarcoidosis CNS Lupus Rasmussen Encephalitis Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD)
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
Up to 36
Sex
Any
Study type
Observational
Participants needed
500 (estimated)
Sponsor
University of Bern · Other
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About This Trial
The Swiss-Ped-IBrainD is a national patient registry that collects information on diagnosis, symptoms, treatment, and follow-up of pediatric patients with an inflammatory brain disease in Switzerland. It was first implemented in 2020 in the pediatric clinic of the university hospital in Bern. Further centers all over Switzerland opened for recruitment after that: Aarau, Basel, Bellinzona, Chur, Ge…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: All patients living and/or treated in Switzerland with an IBrainD specified in the following list diagnosed from 2005 onward and with a disease onset before the age of 18. * Written informed consent by patients (and/or legal representative(s), if applicable) * Optic Neuritis * …
Contacts

Lorena F Hulliger, MSc

+41316845678

lorena.hulliger@unibe.ch

CONTACT