Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
Recruiting
Observational Study
Turner Syndrome
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Female
- Study type
- Observational
- Participants needed
- 5,000 (estimated)
- Sponsor
- University of Colorado, Denver · Other
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About This Trial
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
1. Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
2. Informed consent/assent as appropriate
Exclusion Criteria:
a. Lack of a TS diagnosis on file
Contacts