Swiss Registry for Neuromuscular Disorders
Recruiting
Observational Study
SMA
DMD
BMD
IMD
Congenital Muscular Dystrophy
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 2,000 (estimated)
- Sponsor
- University of Bern · Other
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About This Trial
The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Children, adolescents and adults diagnosed with a NMD
* Who are living or treated for a NMD in Switzerland, and
* Who gave informed consent
Exclusion Criteria:
* None if diagnosis is confirmed, whenever possible, by genetic testing, or at least by biopsy and/or electroneurom…
Contacts