Standard vs Personalized Genetic Counseling for Li-Fraumeni Syndrome
Willingness to Participate in a Trial Comparing Standard Genetic Counseling Versus Personalized Genetic Counseling
- Sex
- Any
- Study type
- Observational
- Participants needed
- 500 (estimated)
- Sponsor
- M.D. Anderson Cancer Center · Other
This trial is looking for individuals age 15 and older or parents/guardians of patients younger than 15. Participants will share their thoughts on joining a study that compares standard genetic counseling to personalized genetic counseling.
You may be able to join if
- I am age 15 or older
- I am the parent/guardian of a patient younger than 15
- I am pregnant
- I speak English
- I have received genetic counseling for TP53 genetic testing
- I consent to undergo TP53 genetic testing
- I have a genetic test that shows a TP53 germline mutation
You may not be able to join if
- I do not speak English
- I have low suspicion for a TP53 germline mutation and tested negative for it
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your EligibilityThis study evaluates patients willingness to participate in a trial comparing standard genetic counseling versus personalized genetic counseling. Collecting information from patients may help researchers learn why patients may or may not take part in the future study that compares standard genetic counseling to personalized genetic counseling.
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