Metabolic Control and Patient Well-being in Phenylketonuria: do Guidelines Make a Difference?
Recruiting
Observational Study
Phenylketonurias
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 10 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 200 (estimated)
- Sponsor
- University Children's Hospital, Zurich · Other
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About This Trial
Treatment of PKU implies for most patients that with strict adherence to dietary treatment they can achieve excellent neurocognitive outcome. Dietary treatment, though, is hard to comply to every day and with every single meal. Unsurprisingly, health-related quality of life (HrQol) is negatively affected if patients have to follow a dietary regime of this kind. Adherence to treatment in PKU is ver…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:- Patients with PKU from age 10 years requiring dietary and / or pharmacological treatment according to locally applied guidelines
* Parents of patients with PKU aged 10 to 18 years requiring dietary and / or pharmacological treatment according to locally applied guidelines
* Abi…
Contacts