Swiss Rare Disease Registry (SRDR)
Recruiting
Observational Study
Rare Diseases
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 500,000 (estimated)
- Sponsor
- University of Bern · Other
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About This Trial
The SRDR is a national registry that records rare diseases in people of any age who live in Switzerland. It serves as a platform for scientists, health professionals, affected people, and politicians.The SRDR aims to collect epidemiological data on rare diseases, and data on changes to the diagnosis over time. The SRDR will further serve as a research platform and facilitate patient participation …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosed with a rare disease
* High suspicion of a rare disease
* Treated or living in Switzerland
* Signed informed consent
Exclusion Criteria:
* None
Contacts