French Wilson Disease Registry
Recruiting
Observational Study
Wilson Disease
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 – 99
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Fondation Ophtalmologique Adolphe de Rothschild · Research network
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About This Trial
This registry concerns adults and children with Wilson's disease. The collection of a large amount of data will allow a better understanding of the epidemiology of this rare disease, in particular the age of onset according to the hepatic or hepato-neurological forms, but also the geographical distribution of patients consulting in France. This database will also make it possible to know all the t…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All patients suffering from Wilson disease
Exclusion Criteria:
* Lack of written consent from the patient or their legal representative
Contacts