Data Collection of Patients With Rare Bone Diseases
Recruiting
Observational Study
Skeletal Dysplasia
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Luca Sangiorgi · Other
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About This Trial
RD-DATA is a retrospective and prospective data collection, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.
This approach has been developed to corroborate and integrate data from diffe…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* All patients affected by rare diseases with predominantly skeletal involvement
Exclusion Criteria:
* Any condition unrelated to rare diseases with predominantly skeletal involvement
Contacts