The Global Angelman Syndrome Registry
Recruiting
Observational Study
Angelman Syndrome
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 5,000 (estimated)
- Sponsor
- Foundation for Angelman Syndrome Therapeutics, Australia · Other
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Answer a few quick questions to see if you may meet the eligibility requirements.
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About This Trial
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis of Angelman Syndrome
Exclusion Criteria:
\-
Contacts