Congenital Aniridia Patient Questionnaire
Recruiting
Observational Study
Congenital Aniridia
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 100 (estimated)
- Sponsor
- Assistance Publique - Hôpitaux de Paris · Other
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
Congenital aniridia is a pan-ocular genetic disease characterized by a partial or complete absence of the iris, hence its name. The prevalence ranges from 1 / 40,000 to 1 / 96,000 births, but it may be underestimated. This condition combines several types of eye damage and could associate systemic manifestations, with a variable phenotype and genotype.
This study aims to identify eye and systemic…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Any patient ≥ 18 years old with congenital aniridia and able to respond independently to the study survey,
* or patients under 18 years old with congenital aniridia, whose parents can answer the study survey,
* adult patients or holders of parental authority and minor patients…
Contacts