Glioma Developmental and HyperActive Ras Tumor (DHART) Board
Recruiting
Observational Study
Glioma
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 50 (estimated)
- Sponsor
- Memorial Sloan Kettering Cancer Center · Other
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About This Trial
This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition.
This registry study will help the researchers learn more about the diagnosis,…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Clinical diagnosis that meets NIH criteria for NF1 disease by either 1) documented clinical record establishing NF1 or 2) self-reported with supported documentation upon medical record collection.
* Willing to have historical and future NF1 related health records sent to regis…
Contacts
Ingo Mellinghoff, MD
646-888-3036
CONTACT