No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Age
18 – 120
Sex
Any
Study type
Observational
Participants needed
50,000 (estimated)
Sponsor
Tufts Medical Center · Other
Who this trial is looking for
This trial is looking for adults with chronic kidney disease, including those on dialysis and kidney transplant patients. Participants will share health information and experiences online without needing to take medications or undergo additional tests.
Are You a Good Fit for This Trial?
You may be able to join if
I have chronic kidney disease or have had a kidney transplant.
I am 18 years old or older.
I am willing to participate in this study.
I can complete the informed consent form.
I can participate in English.
You may not be able to join if
I have not been diagnosed with chronic kidney disease.
I am under 18 years old.
I am not willing to participate in the study.
I am not willing to complete the informed consent form.
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyC…
For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and will enhance clinical research, clinical care, and health policy decisions to be centered on the patient. The Study is all online and can be accessed any time of day at kidneycarestudy.org. Participation is voluntary and free.
Trial Locations
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Status
Eligibility Criteria
Inclusion Criteria:
* Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis.
* Age 18 years and above.
* Willing to participate in the Study and complete the informed consent form and assent form (where applicable).
* Able to participate in this Study, whic…
Inclusion Criteria:
* Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis.
* Age 18 years and above.
* Willing to participate in the Study and complete the informed consent form and assent form (where applicable).
* Able to participate in this Study, which initially will be in English and then eventually expand to other languages.
* Patients affiliated with Geisinger Health System must have given their consent to Geisinger Health System IRB to be contacted for research projects.
Exclusion Criteria:
* Patient not diagnosed with CKD
* Age below 18 years
* Not willing to participate in the Study as well as unwilling to complete the informed consent form
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