Global Registry and Natural History Study for Mitochondrial Disorders
Recruiting
Observational Study
Mitochondrial Diseases
Kearns-Sayre Syndrome
MIDD
SANDO
SCAE
NARP Syndrome
MELAS Syndrome
MERRF Syndrome
Coenzyme Q10 Deficiency
LHON
MNGIE
MIRAS
Barth Syndrome
MDS
Mitochondrial Myopathies
Leigh Syndrome
Pearson Syndrome
CPEO
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 6,000 (estimated)
- Sponsor
- LMU Klinikum · Other
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About This Trial
The main goal of the project is provision of a global registry for mitochondrial disorders to harmonize previous national registries, enable world-wide participation and facilitate natural history studies, definition of outcome measures and conduction of clinical trials.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* suspected or confirmed mitochondrial disease
* willingness to participate
Exclusion Criteria:
* unwillingness to participate
Contacts