Prospective, Longitudinal, Observational Registry of Adult Patients With Hypophosphatasia (REG-HYPO)

Recruiting Observational Study
Hypophosphatasia
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
200 (estimated)
Sponsor
Assistance Publique - Hôpitaux de Paris · Other
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About This Trial

The purpose of this study is to assess medical events during follow-up of adult patients having hypophosphatasia and consulting rheumatologists.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * men and women, * aged 18 and over, with no upper age limit, who have had a total alkaline phosphatase value of less than 40 IU/l on at least 3 occasions, or at least a total alkaline phosphatase value below 40 IU/L and evidence of ALPL gene polymorphism * with at least one rhe…
Contacts

Christian ROUX, MD, PhD

0158412579

christian.roux@aphp.fr

CONTACT

Valérie PLENCE, MSc

0171760781/0158413478

valerie.plence-fauroux@aphp.fr

CONTACT