Anticipated Patient and Caregiver Burden

Recruiting N/A Interventional Study
Amyotrophic Lateral Sclerosis
No Placebo Group Every participant receives an active treatment — no one gets a placebo.
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At a Glance
Age
18 and older
Sex
Any
Study type
Interventional
Purpose
Supportive Care
Participants needed
126 (estimated)
Sponsor
Assistance Publique Hopitaux De Marseille · Other
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About This Trial
Amyotrophic lateral sclerosis (ALS) is a degenerative neurological disease that causes progressive motor disability and is life threatening within a few years. The severity of the disease, the progressive loss of autonomy that leads to dependence on family and caregivers, and the lack of effective treatment sometimes leads patients to a loss of hope and to dark thoughts. The prevalence of suicidal…
Trial Locations
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Eligibility Criteria
Inclusion Criteria (patient) : * Patient is at least 18 years of age. * Patient having given informed consent * Patient with ALS who has already had at least two multidisciplinary assessments in the ALS center in Marseille with an evaluation by the clinical psychologist. * Patient with a motor hand…
Contacts

Annie Verschueren

0491386578

annie.verschueren@ap-hm.fr

CONTACT

Annie Verschueren

CONTACT