TSC Biosample Repository and Natural History Database

Recruiting Observational Study
Tuberous Sclerosis Lymphangioleiomyomatosis
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
5,000 (estimated)
Sponsor
National Tuberous Sclerosis Association · Other
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About This Trial
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected re…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM). Exclusion Criteria: \-
Contacts

Elizabeth Cassidy, MPH

301-562-9890

ecassidy@tscalliance.org

CONTACT

Ayat Abi

aabi@tscalliance.org

CONTACT