International Rare Brain Tumor Registry

Recruiting Observational Study
Astroblastoma BCOR ITD Sarcoma CNS Sarcoma Unclassified Tumor, Malignant
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
Up to 45
Sex
Any
Study type
Observational
Participants needed
5,800 (estimated)
Sponsor
Children's National Research Institute · Other
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About This Trial

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Patients with a known or suspected CNS Sarcoma. * Patients with a known or suspected BCOR-altered brain tumor * Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor * Patients with known or suspected histologically ambiguous/unclassifiable brain tumor * Pa…
Contacts

Adriana Fonseca, MD

202-476-8399

afonsecash@childrensnational.org

CONTACT

Hope Lovell

202-476-3898

hlovell@childrensnational.org

CONTACT