Natural History of SMA

Recruiting Observational Study
Muscular Atrophy, Spinal
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
1,200 (estimated)
Sponsor
Fondazione Policlinico Universitario Agostino Gemelli IRCCS · Other
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About This Trial

This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.

Trial Locations
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Eligibility Criteria
Inclusion Criteria: all patients Exclusion Criteria: if enrolled in clinical trials
Contacts

Eugenio Mercuri, MD

06 3015

eugeniomaria.mercuri@policlinicogemelli.it

CONTACT

Marika Pane, MD

063015

marika.pane@policlinicogemelli.it

CONTACT