Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing
Recruiting
N/A
Interventional Study
Genetic Predisposition to Disease
Genetic Predisposition
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
At a Glance
- Age
- 18 – 39
- Sex
- Any
- Study type
- Interventional
- Purpose
- Health Services Research
- Participants needed
- 40 (estimated)
- Sponsor
- Dana-Farber Cancer Institute · Other
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About This Trial
This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS).
The name of the intervention used in this research study is:
Nest portal (electronic…
Trial Locations
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Eligibility Criteria
Inclusion Criteria AIM 1:
* YA Patients:
* Ages 18-39 years, inclusive.
* Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.
* English-speaking and -reading.
* Receiving care at DFCI.
* N…
Contacts