Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome
Recruiting
N/A
Interventional Study
Marfan Syndrome
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 7 – 17
- Sex
- Any
- Study type
- Interventional
- Purpose
- Prevention
- Participants needed
- 30 (estimated)
- Sponsor
- University Hospital, Toulouse · Other
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About This Trial
This research study aims to evaluate the effect of a 6-month adapted physical activity program (APA) on the endurance capacities (evaluated as the maximum oxygen consumption \[VO2 peak\] on a cardiopulmonary exercise test) of children and adolescents with Marfan syndrome or related.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Genetically confirmed Marfan syndrome or related syndrome
* Girl or boy aged 7 to 17
* Informed and written consent signed by at least one of the two holders of parental authority
* Patient affiliated to a social security scheme or equivalent
Exclusion Criteria:
* Cardiac co…
Contacts