Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.
Recruiting
Observational Study
Amyotrophic Lateral Sclerosis
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 25,000 (estimated)
- Sponsor
- Ambulanzpartner Soziotechnologie APST GmbH · Industry
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About This Trial
This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported ou…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: Diagnosis of a chronic neurological disease -
Exclusion Criteria: Lack of cooperation and unwillingness to store and share medical data collected in the registry study
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Contacts