No Study Drug
Researchers observe your health over time — no experimental treatment is given.
Ready to participate?
Review the details below, then apply to join this clinical trial.
At a Glance
Age
0 – 89
Sex
Any
Study type
Observational
Participants needed
6,000 (estimated)
Sponsor
University of Alabama at Birmingham · Other
Who this trial is looking for
This trial is looking for people diagnosed with histiocytic disorders. Participation involves sharing information about health conditions, pain, and quality of life.
Are You a Good Fit for This Trial?
You may be able to join if
I have been diagnosed with a histiocytic disorder
Summarized in plain language from this trial's official eligibility criteria.
The full criteria are further down this page — only the research team can
confirm whether you qualify.
Think this trial could be right for you?
Answer a few quick questions to see if you may meet the eligibility requirements.
The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders
Trial Locations
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City
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Status
Eligibility Criteria
Inclusion Criteria:
* diagnosis of histiocytic disorder at any age
1. Langerhans cell histiocytosis,
2. Erdheim-Chester disease,
3. Rosai-Dorfman disease,
4. Xanthogranuloma,
5. Mixed histiocytosis
6. Malignant histiocytosis (Histiocytic sarcoma, langerhans cell sarcoma, interdigitatin…
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