Data Collection Protocol for Patients With Von Hippel Lindau Disease
Recruiting
Observational Study
Von Hippel Lindau Disease
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 125 (estimated)
- Sponsor
- M.D. Anderson Cancer Center · Other
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About This Trial
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Presence of genetic confirmation or clinical criteria consistent with vHL disease.
* Ability to understand and the willingness to sign a written informed consent document.
Exclusion Criteria:
• Patients with psychiatric illness/social situations that would limit compliance w…
Contacts