Assessments in Patients With Muscular Pathology and in Control Subjects : The ActiLiège Next Study
Recruiting
N/A
Interventional Study
Duchenne Muscular Dystrophy
Fascioscapulohumeral Muscular Dystrophy
Myotonic Dystrophy 1
Charcot-Marie-Tooth
Centronuclear Myopathy
Congenital Muscular Dystrophy
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
At a Glance
- Age
- 1 – 80
- Sex
- Any
- Study type
- Interventional
- Purpose
- Basic Science
- Participants needed
- 300 (estimated)
- Sponsor
- Centre Hospitalier Universitaire de Liege · Other
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About This Trial
The objective of the ActiLiège Next study is to collect longitudinal data from patients and control subjects using a wearable magneto-inertial device. By collecting natural history data in various neuromuscular disorders (Duchenne Muscular Dystrophy, Fascioscapulohumeral Muscular Dystrophy, Myotonic Dystrophy 1, Charcot-Marie-Tooth, Centronuclear Myopathy, Congenital Muscular Dystrophy), we aim to…
Trial Locations
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Eligibility Criteria
Inclusion criteria
* For the patients:
* Genetically confirmed diagnosis of DMD, FSHD, DM1, CMT or FKRP mutations or confirmed CNM based on muscle biopsy.
* FSHD, DM1, CMT and CNM patients should be ambulant or in transition.
* DM1 and CMT patients should present sensori-motor signs on physi…
Contacts