Assessments in Patients With Muscular Pathology and in Control Subjects : The ActiLiège Next Study

Recruiting N/A Interventional Study
Duchenne Muscular Dystrophy Fascioscapulohumeral Muscular Dystrophy Myotonic Dystrophy 1 Charcot-Marie-Tooth Centronuclear Myopathy Congenital Muscular Dystrophy
No Placebo Group Every participant receives an active treatment — no one gets a placebo. Healthy Volunteers Welcome You do not need to have the condition being studied to take part.
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At a Glance
Age
1 – 80
Sex
Any
Study type
Interventional
Purpose
Basic Science
Participants needed
300 (estimated)
Sponsor
Centre Hospitalier Universitaire de Liege · Other
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About This Trial
The objective of the ActiLiège Next study is to collect longitudinal data from patients and control subjects using a wearable magneto-inertial device. By collecting natural history data in various neuromuscular disorders (Duchenne Muscular Dystrophy, Fascioscapulohumeral Muscular Dystrophy, Myotonic Dystrophy 1, Charcot-Marie-Tooth, Centronuclear Myopathy, Congenital Muscular Dystrophy), we aim to…
Trial Locations
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Eligibility Criteria
Inclusion criteria * For the patients: * Genetically confirmed diagnosis of DMD, FSHD, DM1, CMT or FKRP mutations or confirmed CNM based on muscle biopsy. * FSHD, DM1, CMT and CNM patients should be ambulant or in transition. * DM1 and CMT patients should present sensori-motor signs on physi…
Contacts

Charline DUBOIS

043215695

charline.dubois@citadelle.be

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