Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)
Recruiting
N/A
Interventional Study
Telomeric 22Q13 Monosomy Syndrome
Tuberous Sclerosis
Hamartoma Syndrome, Multiple
Fragile X Syndrome
Angelman Syndrome
Rett Syndrome
Chromosome 15Q, Partial Deletion
Creatine Deficiency, X-linked
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 2 – 12
- Sex
- Any
- Study type
- Interventional
- Purpose
- Treatment
- Participants needed
- 92 (estimated)
- Sponsor
- Rush University Medical Center · Other
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About This Trial
The purpose of this study is to evaluate the effectiveness of an adapted, telehealth functional behavioral therapy (FBTsIDD) specifically focused on promoting appropriate communication and behavioral strategies in individuals with syndromic intellectual and developmental disorders.
Participants will be asked to complete virtual study assessments at intake and then on a monthly basis for the durat…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Age(s) 2-12 years old at time of enrollment
* Existing genetic syndrome based on clinical or genetic diagnosis and confirmed by medical records
* Documented diagnosis of global developmental delay (GDD) or intellectual disability (ID)
* estimated ID in all ranges
* Disruptive …
Contacts