Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Recruiting Observational Study
Sarcoidosis
Healthy Volunteers Welcome You do not need to have the condition being studied to take part. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Age
7 and older
Sex
Any
Study type
Observational
Participants needed
6,833 (estimated)
Sponsor
Foundation for Sarcoidosis Research · Other
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About This Trial
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of s…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: 1. English speaking 2. Consent 3. Sarcoidosi diagnosis - Exclusion Criteria: NONE
Contacts

Leslie Serhuck, MD MA Mbioethics

312-341-0500

info@stopsarcoidosis.org

CONTACT

Tricha Shivas, MBe

312-341-0500

tricha@stopsarcoidosis.org

CONTACT