Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
Recruiting
Observational Study
Quality of Life
Ichthyosis
Palmoplantar Keratoses
Epidermolysis Bullosa
Ectodermal Dysplasia
Basal Cell Nevus Syndrome
Birt-Hogg-Dube Syndrome
Tuberous Sclerosis
Cutis Laxa
Albinism
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 25 (estimated)
- Sponsor
- Maastricht University Medical Center · Other
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About This Trial
The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, de…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Adult patients with genodermatosis (i.e, keratinisation disorders, skin fragility diseases, ectodermal dysplasias, dermato-oncological syndromes, other genodermatoses) and a desire to have children, with if applicable his or her partner with a desire to have children
* Patient…
Contacts