Relationship Between Breathing and Attention in Children With Ondine Syndrome
Recruiting
Observational Study
Ondine Syndrome
Congenital Central Hypoventilation Syndrome (CCHS)
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 6 – 16
- Sex
- Any
- Study type
- Observational
- Participants needed
- 20 (estimated)
- Sponsor
- Assistance Publique - Hôpitaux de Paris · Other
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About This Trial
Congenital central hypoventilation syndrome (CCHS) is a rare disorder of autonomic and respiratory regulation that alters oxygen delivery to the brain. CCHS patients are at risk for broad neurocognitive deficits. Patients retain ventilatory activity when awake through a respiratory-related cortical network but the need to mobilise cortical resources to breathe lead to breathing-cognition interfere…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* children with CCHS (Ondine Syndrome) and IQ \> 70, age from 6 to 16 years old, french speaking, informed consent signed by both parents and oral agreement in principle given by the subject.
Exclusion Criteria:
* IQ \< 70
Contacts