Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection

Recruiting Observational Study
VEXAS Syndrome
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
18 and older
Sex
Any
Study type
Observational
Participants needed
500 (estimated)
Sponsor
Technische Universität Dresden · Other
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About This Trial

The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers

Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome * Age ≥18 years * Signed informed consent form Exclusion Criteria: * patients who are not in a position to understand the nature and scope of participation in this register
Contacts

Katja Sockel, Dr. med.

+493514585627

katja.sockel@ukdd.de

CONTACT

Katharina Goetze, Prof.

+498941404618

katharina.goetze@tum.de

CONTACT