Developmental and Epileptic Encephalopathy of Genetic Etiology: Natural History Through Reuse of Clinical Data
Recruiting
Observational Study
Developmental and Epileptic Encephalopathy
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 400 (estimated)
- Sponsor
- Imagine Institute · Other
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About This Trial
Developmental and Epileptic Encephalopathy (DEE) are a heterogeneous group of neurodevelopmental disorders linked to both epilepsy and its underlying etiology, independently of epileptiform activity.
The creation of a database with retrospective follow-up of a large number of patients on a national scale will enable better knowledge of specific biomarkers, and thus a better classification and und…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Diagnosis of Developmental and Epileptic Encephalopathy
* Registered with or benefiting from a social security scheme.
Exclusion Criteria:
* Opposition of the patient or his/her parents to the re-use of data in the context of this study
* Person subject to a safeguard of jus…
Contacts