Biomarkers in SCOTland CardiomyopatHy Registry (Bio-SCOTCH)
Recruiting
Observational Study
Cardiomyopathies
Genetic Predisposition
Cardiomyopathy, Primary
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 10 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 750 (estimated)
- Sponsor
- NHS Greater Glasgow and Clyde · Other
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About This Trial
Genetic cardiomyopathy is increasingly recognised and can lead to heart failure, arrhythmia and sudden cardiac death. Some gene positive patients have rapidly progressive disease with high rates of heart failure and cardiac transplantation, while others present with SCD. Other gene positive patients will never develop cardiomyopathy. At present, we cannot distinguish between these groups and rely …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Male or female ≥10 years of age
* Written informed consent / assent
* Pathogenic or likely pathogenic variant in a cardiomyopathy gene (TTN, LMNA, MYBPC3, DSP, FLNC) or undergoing predictive genetic testing (if negative these people would be invited to enter the control arm)
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Contacts