Disease Burden and Living Situation of Patients With Facioscapulohumeral Muscular Dystrophy
Recruiting
Observational Study
Muscular Dystrophy, Facioscapulohumeral
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 300 (estimated)
- Sponsor
- Xi'an Jiaotong University · Other
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About This Trial
The goal of this observational study is to learn the patient journey, disease burden, living situation, quality of life and etc. in patients with Facioscapulohumeral Muscular Dystrophy in all sex/gender and age groups. The main questions it aims to answer are:
1. What's the patient journey of patients with Facioscapulohumeral Muscular Dystrophy?
2. How does Facioscapulohumeral Muscular Dystrophy …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Having been diagnosed as Facioscapulohumeral Muscular Dystrophy
Exclusion Criteria:
* No
Contacts