A Multicenter Pediatric Deep Brain Stimulation Registry

Recruiting Observational Study
Dystonia Epilepsy in Children Cerebral Palsy Tourette Syndrome Obsessive-Compulsive Disorder Neurologic Disorder Movement Disorders in Children Movement Disorders Deep Brain Stimulation
No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
0 – 18
Sex
Any
Study type
Observational
Participants needed
100 (estimated)
Sponsor
Boston Children's Hospital · Other
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About This Trial
There is limited data on outcomes for children who have undergone deep brain stimulation (DBS) for movement disorders, and individual centers performing this surgery often lack sufficient cases to power research studies adequately. This study aims to develop a multicenter pediatric DBS registry that allows multiple sites to share clinical pediatric DBS data. The primary goals are to enable large-s…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Female or male patients between ages of 0-18 years. * Having received or scheduled to receive DBS for any neurological movement disorder. * Parents or legal guardians are able to provide written consent for prospective enrollment.
Contacts

Darius Ebrahimi-Fakhari, MD, PhD

617-355-0097

movementdisorders@children.harvard.edu

CONTACT

Kathryn Yang, MBChB, FRCPC

movementdisorders@children.harvard.edu

CONTACT