HRQoL and Financial Toxicity in Patients With VEXAS Syndrome
Recruiting
Observational Study
VEXAS
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 – 99
- Sex
- Any
- Study type
- Observational
- Participants needed
- 100 (estimated)
- Sponsor
- Gruppo Italiano Malattie EMatologiche dell'Adulto · Other
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About This Trial
This multicenter cross-sectional observational study aims to describe health-related quality of life (HRQoL) and symptom profiles of patients with VEXAS syndrome.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Adult patients (≥ 18 years old) with a confirmed diagnosis of VEXAS syndrome (UBA1 pathogenic mutation detected)
* Written informed consent
Exclusion Criteria:
* \- Having any kind of psychiatric disorder or major cognitive dysfunction.
* Not able to read and understand loca…
Contacts