Study on Rare Lipid Disorders and Atherosclerosis

Natural History of Uncommon Dyslipidemias, Rare Lipid Disorders and Unusual Atherosclerotic Conditions

Recruiting Observational Study
Dyslipidemia Atherosclerosis
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Age
10 – 90
Sex
Any
Study type
Observational
Participants needed
1,500 (estimated)
Sponsor
National Heart, Lung, and Blood Institute (NHLBI) · NIH
Who this trial is looking for

This trial is looking for individuals aged 10 and older with rare disorders affecting fat levels in the blood. Participants will have optional visits where their medical history will be reviewed, and they may undergo physical exams and blood tests.

Are You a Good Fit for This Trial?

You may be able to join if

  • I am 10 years old or older.
  • I have a confirmed or suspected rare lipid disorder.
  • I am willing to provide my medical history.
  • I can understand and sign a consent form.

You may not be able to join if

  • I have a common disorder affecting fat levels.
  • I have other conditions that my doctor believes would prevent me from joining.
  • I am pregnant.

Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.

Think this trial could be right for you?

Answer a few quick questions to see if you may meet the eligibility requirements.

Check Your Eligibility
About This Trial
Background: The right amount of fats in the blood (cholesterol and triglycerides) are a key part of a healthy organism. Too much or too little of these fats may manifest as diseases (dyslipidemia). There are many causes for these abnormalities, but some are genetically determined and we would like to better understand the progression of these conditions over time. Objective: This natural histor…
Trial Locations
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Eligibility Criteria
* INCLUSION CRITERIA: Affected Participants * Male and female participants age \>= 10 years. * Subjects with confirmed or suspected rare disorder that causes lipid/lipoprotein abnormalities (dyslipidemia) or abnormal documented or referred atherosclerosis patterns. * Only affected individuals (not…
Contacts

Joy Lynne V Freeman

(301) 480-7632

joylynne.freeman@nih.gov

CONTACT

Marcelo J Amar, M.D.

(301) 402-0521

mamar@mail.nih.gov

CONTACT