Personalized Exercise Program for Rare Neuromuscular Disorders
Personalized Training for People With Rare Neuromuscular Disorders
Recruiting
N/A
Interventional Study
Neuromuscular Diseases (NMD)
Charcot Marie Tooth Disease (CMT)
Facioscapulohumeral Muscular Dystrophy
Myotonic Dystrophy Type 1 (DM1)
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 18 – 70
- Sex
- Any
- Study type
- Interventional
- Purpose
- Treatment
- Participants needed
- 120 (estimated)
- Sponsor
- Oslo University Hospital · Other
Who this trial is looking for
This trial is looking for adults with certain rare neuromuscular disorders to see if a personalized exercise program can improve their balance and physical function. Participants will be compared against a group receiving regular follow-up care.
Are You a Good Fit for This Trial?
You may be able to join if
- I have been diagnosed with Charcot-Marie-Tooth disease, Facioscapulohumeral Muscular Dystrophy, or Myotonic Dystrophy Type 1.
- I am between 18 and 70 years old.
- I can stand, get up from a chair, and walk at least 10 meters.
- I have been referred for rehabilitation by my doctor or physiotherapist.
- I can understand and follow instructions in Norwegian.
- I can give signed informed consent.
You may not be able to join if
- I am pregnant or planning to become pregnant.
- I have another neurological or non-neurological disorder that affects my physical ability.
- I have a history of alcohol or drug abuse.
- I have not been compliant with medical advice in the past.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
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About This Trial
The goal of this study is to investigate the effects of personalized exercise treatment on dynamic balance and physical function in comparison with regular follow-up in adults with rare-neuromuscular disorders: Charcot-Marie-Tooth (CMT), Facioscapulohumeral Muscular Dystrophy (FSHD), and Myotonic Dystrophy Type 1 (DM1).
The key objectives are:
1. To investigate if the intervention group experien…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* A confirmed diagnosis of either FSHD, DM1 or CMT
* 18-70 years of age at the time of signing the informed consent.
* Any gender
* Ability to stand, rise from a chair and walk at least 10 meters with or without any need of assistive devices
* Indication for rehabilitation as co…
Contacts