Understanding Anxiety in Cancer Screenings for Fanconi Anemia
Experience and Management of Cancer Screening-Related Anxiety in Fanconi Anemia
Recruiting
Observational Study
Fanconi Anemia
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 – 100
- Sex
- Any
- Study type
- Observational
- Participants needed
- 20 (estimated)
- Sponsor
- National Cancer Institute (NCI) · NIH
Who this trial is looking for
This trial is looking for adults with Fanconi anemia (FA) to learn about their anxiety related to cancer screenings. Participants will be observed during their regular clinic visits, where their feelings and experiences will be noted.
Are You a Good Fit for This Trial?
You may be able to join if
- I have been diagnosed with Fanconi anemia.
- I am 18 years of age or older.
- I can speak, read, and/or write in English to understand and agree to consent.
- I am enrolled in the FACSS study.
You may not be able to join if
- I do not meet the eligibility criteria.
- I have opted out of allowing my data to be used for research.
- I declined to have Dr. Emily Pearce shadow my clinical visits.
Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.
Think this trial could be right for you?
Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.
Check Your Eligibility
About This Trial
Background:
Fanconi anemia (FA) is a rare, inherited cancer syndrome. FA causes a range of physical issues. Children with FA may have abnormal features; these may include a small head and eyes and issues with their internal organs. Young adults have a much higher risk of cancer. To screen for these cancers, people with FA may need to pursue many visits with different doctors. This constant need f…
Trial Locations
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Eligibility Criteria
* INCLUSION CRITERIA:
Participants enrolled in the FACSS protocol who are 18 years of age or older are eligible for inclusion in this study. Clinical visits eligible for ethnographic observation are limited to initial visits (medical history and physical examination) and/or return of results visits…
Contacts