Genetic of Intellectual Deficiency and Autism Spectrum Disorders (RaDiCo-GenIDA)
Recruiting
Observational Study
Genetic of Intellectual Deficiency
Autism Spectrum Disorder
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 1,000 (estimated)
- Sponsor
- Institut National de la Santé Et de la Recherche Médicale, France · Government
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About This Trial
The aim of this observational study is to develop an alternative database model for genetically originated intellectual disabilities. This model will take the form of an online cohort study, where the majority of clinical information will be provided by the families of the patients. Questionnaires developed by professionals but formulated in a way understandable to families will be used to gather …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Be a voluntary adult (aged 18 or older)
* Be a family member (i.e., mother/father) of patients with intellectual disabilities and/or autism spectrum disorders of known genetic origin. This includes monogenic causes as well as recurrent copy number variations (CNVs) such as del…
Contacts