DMD Voice: Qualitative Interviews With Patients and Caregivers
Recruiting
Observational Study
Duchenne Muscular Dystrophy (DMD)
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 10 and older
- Sex
- Male
- Study type
- Observational
- Participants needed
- 68 (estimated)
- Sponsor
- Red Nucleus Enterprise Solutions, LLC · Industry
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About This Trial
The purpose of this study is to understand DMD functional losses or abilities and their association with independence and quality of life from the perspective of individuals with DMD and/or and their caregivers.
This is a qualitative interview study in which individuals with DMD and/or their caregivers will be asked to participate in a semi-structured, approximately 60- minute interview. Intervie…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
Subsample A - Patients
Eligible participants for Subsample A must:
* Have been treated with Givinostat for at least 2 years
* Be at least 10 years of age with signed consent of a parent or legal guardian
* Be currently taking givinostat
* Willing and able to participate in a v…
Contacts