Research Accelerated by You Lupus Registry

Research Accelerated by You Lupus Registry

Recruiting Observational Study
Systemic Lupus Erythematosus (SLE) Lupus Nephritis (LN) Cutaneous Lupus Erythematosus (CLE)
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Sex
Any
Study type
Observational
Participants needed
10,000 (estimated)
Sponsor
Lupus Foundation of America · Other
Who this trial is looking for

This trial is looking for adults and parents of children with lupus to help understand the condition better. Participants will complete surveys online about their experiences and care.

Are You a Good Fit for This Trial?

You may be able to join if

  • I am 18 years of age or older
  • I have been diagnosed with lupus by a doctor
  • I can provide my own consent
  • I can read and understand English
  • I have a computer with internet access

You may not be able to join if

  • I do not have lupus

Summarized in plain language from this trial's official eligibility criteria. The full criteria are further down this page — only the research team can confirm whether you qualify.

Think this trial could be right for you?

Answer three quick questions written from this study's own rules to see if you may qualify. No account needed to find out.

Check Your Eligibility
About This Trial
Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease. Remote Participation This is a decentralized, online-only registry. Part…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * For adults with lupus, the individual who completes the Registry: * is 18 years of age or older * has a self-reported diagnosis of lupus by a physician or health care provider * is willing and able to provide informed consent * is able to read and understand English s…
Contacts

Joy N Buie, PhD, MSCR, BSN

202-924-4818

buie@lupus.org

CONTACT

Daniel McSkimming, PhD

202-349-1155

mcskimming@lupus.org

CONTACT