Research Accelerated by You Lupus Registry

Recruiting Observational Study
Systemic Lupus Erythematosus (SLE) Lupus Nephritis (LN) Cutaneous Lupus Erythematosus (CLE)
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Sex
Any
Study type
Observational
Participants needed
10,000 (estimated)
Sponsor
Lupus Foundation of America · Other
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About This Trial
Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease. Remote Participation This is a decentralized, online-only registry. Part…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * For adults with lupus, the individual who completes the Registry: * is 18 years of age or older * has a self-reported diagnosis of lupus by a physician or health care provider * is willing and able to provide informed consent * is able to read and understand English s…
Contacts

Joy N Buie, PhD, MSCR, BSN

202-924-4818

buie@lupus.org

CONTACT

Daniel McSkimming, PhD

202-349-1155

mcskimming@lupus.org

CONTACT