Digital Measures for Clinical Trial Endpoints in Huntington's Disease
Recruiting
Observational Study
Huntington Disease
Healthy
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 25 – 65
- Sex
- Any
- Study type
- Observational
- Participants needed
- 100 (estimated)
- Sponsor
- University of Rochester · Other
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Answer a few quick questions to see if you may meet the eligibility requirements.
Check Your Eligibility
About This Trial
MEND-HD is a longitudinal study evaluating the feasibility of passive monitoring of gait and chorea in patients with HD and the meaningfulness of these outcomes for patients with HD and their care partners/support persons.
Participants will take part in four virtual visits with study investigators to answer survey questions on movement and cognition, perform in-home movement assessments, and take…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
Inclusion Criteria for participants with adult-onset HD:
* Age of 25-65 years.
* Genetically confirmed HD with CAG \>= 40 (HD-ISS Stage 2 or mild/moderate Stage 3)
* English speaking.
Inclusion Criteria for control participants:
* Age of 25-65 years.
* English speaking.
Incl…
Contacts