Using a Speech-Generating Device to Support Communication in Rare Genetic Conditions

Recruiting N/A Interventional Study
Genetic Disease Nonverbal Communication Augmentative and Alternative Communication Rare Genetic Disease Rare Genetic Disorders
No Placebo Group Every participant receives an active treatment — no one gets a placebo.
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At a Glance
Age
3 – 12
Sex
Any
Study type
Interventional
Purpose
Supportive Care
Participants needed
38 (estimated)
Sponsor
Murdoch Childrens Research Institute · Other
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About This Trial
Individuals with rare genetic conditions may experience a delay or loss of developmental skills. Many have limited verbal speech. The aim of this clinical trial is to examine how well a speech-generating device supports the communication skills of participants with a rare genetic condition. The speech-generating device is a communication program loaded onto an iPad. This is a crossover trial, mea…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Is between the ages of 3 and 12 years, inclusive, at the time of enrolment * Has a diagnosis of a rare genetic disorder * Passes a visual-motor screening test, therefore being able to tap on an iPad spontaneously or by imitation and has adequate hearing * Considered "minimally…
Contacts

Angela T Morgan

+61 (03) 8341 6458

angela.morgan@mcri.edu.au

CONTACT

Shui J Wong

+61 (03) 9345 5533

jen.wong@mcri.edu.au

CONTACT