Using a Speech-Generating Device to Support Communication in Rare Genetic Conditions
Recruiting
N/A
Interventional Study
Genetic Disease
Nonverbal Communication
Augmentative and Alternative Communication
Rare Genetic Disease
Rare Genetic Disorders
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 3 – 12
- Sex
- Any
- Study type
- Interventional
- Purpose
- Supportive Care
- Participants needed
- 38 (estimated)
- Sponsor
- Murdoch Childrens Research Institute · Other
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About This Trial
Individuals with rare genetic conditions may experience a delay or loss of developmental skills. Many have limited verbal speech. The aim of this clinical trial is to examine how well a speech-generating device supports the communication skills of participants with a rare genetic condition. The speech-generating device is a communication program loaded onto an iPad.
This is a crossover trial, mea…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Is between the ages of 3 and 12 years, inclusive, at the time of enrolment
* Has a diagnosis of a rare genetic disorder
* Passes a visual-motor screening test, therefore being able to tap on an iPad spontaneously or by imitation and has adequate hearing
* Considered "minimally…
Contacts