Initial Testing of a Behavioral Intervention About Genetic Services for Families at Risk of Lynch Syndrome
Recruiting
N/A
Interventional Study
Cascade Testing
Lynch Syndrome
Decision Making
Colorectal Cancer
Uterine Cancer
Cancer Prevention
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Interventional
- Purpose
- Diagnostic
- Participants needed
- 185 (estimated)
- Sponsor
- University of Alabama at Birmingham · Other
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About This Trial
The purpose of the study is to see if our education materials help people at risk for Lynch syndrome decide about seeking genetic services. Untested relatives of patients with Lynch syndrome will be recruited to complete a baseline survey and will be randomized to receive either the an information letter or an information letter plus a booklet. Two follow-up surveys will be administered over the s…
Trial Locations
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Eligibility Criteria
Probands Inclusion Criteria:
* English speaking
* at least 18 years old
* have had genetic testing for Lynch syndrome (LS)
* do not have a condition that would interfere with their ability to provide informed consent and complete study activities (e.g., cognitive dysfunction evaluated using clinica…
Contacts