Long-Term Burden of BPD and Health-Related Quality of Life (BronQ Family)

Recruiting Observational Study
Bronchopulmonary Dysplasia (BPD) Chronic Lung Disease of Newborn HRQOL (Health Related Quality Of Life)
No Placebo Group Every participant receives an active treatment — no one gets a placebo. Healthy Volunteers Welcome You do not need to have the condition being studied to take part. No Study Drug Researchers observe your health over time — no experimental treatment is given.
Ready to participate?

Review the details below, then apply to join this clinical trial.

At a Glance
Age
0 – 18
Sex
Any
Study type
Observational
Participants needed
480 (estimated)
Sponsor
Global Foundation for the Care of Newborn Infants · Other
Think this trial could be right for you?

Answer a few quick questions to see if you may meet the eligibility requirements.

Check Your Eligibility
About This Trial
The objective of this study is to examine the long-term impact of having a child with Bronchopulmonary Dysplasia (BPD) on the parents and caregivers from the time of diagnosis through adulthood. The primary focus will be on parents and caregivers of children until the age of 18 (\< 18) years who were diagnosed with BPD as newborns. Data will be collected through an online questionnaire in France, …
Trial Locations
Loading…

Loading trial locations…

Eligibility Criteria
Inclusion Criteria: BPD-group: * Being a parent or primary caregiver of a child until the age of 18 years (0 to under 18 years), * who was born preterm (before 37 weeks of gestation), * who has been discharged from their initial hospital stay after birth, * who suffered from BPD in the newb…
Contacts

Christina Tischer, Dr

+49 (0)89 / 89083260

research@efcni.org

CONTACT

Julia Feiler, Dr

Julia.feiler@gfcni.org

CONTACT