Long-Term Burden of BPD and Health-Related Quality of Life (BronQ Family)
Recruiting
Observational Study
Bronchopulmonary Dysplasia (BPD)
Chronic Lung Disease of Newborn
HRQOL (Health Related Quality Of Life)
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 0 – 18
- Sex
- Any
- Study type
- Observational
- Participants needed
- 480 (estimated)
- Sponsor
- Global Foundation for the Care of Newborn Infants · Other
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About This Trial
The objective of this study is to examine the long-term impact of having a child with Bronchopulmonary Dysplasia (BPD) on the parents and caregivers from the time of diagnosis through adulthood. The primary focus will be on parents and caregivers of children until the age of 18 (\< 18) years who were diagnosed with BPD as newborns. Data will be collected through an online questionnaire in France, …
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
BPD-group:
* Being a parent or primary caregiver of a child until the age of 18 years (0 to under 18 years),
* who was born preterm (before 37 weeks of gestation),
* who has been discharged from their initial hospital stay after birth,
* who suffered from BPD in the newb…
Contacts