Developing an Innovative Decision Support Tool for Pediatric Neuromuscular Scoliosis
Recruiting
N/A
Interventional Study
Children With Medical Complexity (CMC)
Multiple Chronic Conditions
Neuromuscular Scoliosis
Shared Decision Making
Decision Support Systems, Clinical
Decision Aids
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
At a Glance
- Age
- 8 and older
- Sex
- Any
- Study type
- Interventional
- Purpose
- Health Services Research
- Participants needed
- 110 (estimated)
- Sponsor
- University of Utah · Other
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About This Trial
The goal of this pilot hybrid type I efficacy/implementation trial is to assess a newly developed decision support tool patients, parents, and providers to use during surgical treatment decision making for neuromuscular scoliosis (NMS). Results from this pilot will inform the design of a future larger effectiveness trial of the decision support tool.
Participants will either receive usual care or…
Trial Locations
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Eligibility Criteria
Inclusion criteria:
* Parent-child dyads of children with neuromuscular scoliosis who speak English and Spanish.
* Child is between ages 8-21 years of age and they are coming into the pediatric orthopaedic surgery clinic for consultation about potential surgery for NMS.
* NMS is defined as having n…
Contacts