Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Recruiting
Observational Study
Spinal Muscular Atrophy (SMA)
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Age
- 18 and older
- Sex
- Any
- Study type
- Observational
- Participants needed
- 200 (estimated)
- Sponsor
- Medstar Health Research Institute · Other
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About This Trial
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* SMA diagnosis, age greater than or equal to 18 years
Exclusion Criteria:
* Deceased
Contacts