The Spanish National Registry for Myotonic Dystrophy Type 1
Recruiting
Observational Study
Myotonic Dystrophy 1
DM1
Myotonic Dystrophy Type 1
Myotonic Dystrophy, Congenital
Steinert Disease
No Placebo Group
Every participant receives an active treatment — no one gets a placebo.
Healthy Volunteers Welcome
You do not need to have the condition being studied to take part.
No Study Drug
Researchers observe your health over time — no experimental treatment is given.
At a Glance
- Sex
- Any
- Study type
- Observational
- Participants needed
- 3,000 (estimated)
- Sponsor
- Fundació Institut Germans Trias i Pujol · Other
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About This Trial
Myotonic Dystrophy Type 1 (DM1) is a rare genetic neuromuscular condition that can affect multiple organs and varies widely in how it presents. DM1 is the most common form of adult-onset muscular dystrophy, with an estimated prevalence of approximately 1-5 per 10,000 people. In Spain, the condition shows notable regional differences, making it especially important to understand its characteristics…
Trial Locations
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Eligibility Criteria
Inclusion Criteria:
* Confirmed diagnosis of Myotonic Dystrophy Type 1 (DM1) through genetic testing.
Exclusion Criteria:
* There are no exclusion criteria for the registry
Contacts