Bowel Continence Across the Lifespan in People With Spina Bifida

Recruiting Observational Study
Spina Bifida Neurogenic Bowel Bowel Incontinence
No Placebo Group Every participant receives an active treatment — no one gets a placebo. No Study Drug Researchers observe your health over time — no experimental treatment is given.
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At a Glance
Age
5 and older
Sex
Any
Study type
Observational
Participants needed
943 (estimated)
Sponsor
David Chu · Other
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About This Trial
The goal of this observational study is to learn how different enema programs affect bowel control in children and adults with spina bifida. An enema program involves putting liquid into the large intestine (colon) to help someone poop. The main questions it aims to answer are: 1. How well do different enema programs prevent bowel accidents? 2. How do these enema programs affect independence, bow…
Trial Locations
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Eligibility Criteria
Inclusion Criteria: * Minimum age 5 years old * Myelomeningocele diagnosis * Starting a retrograde or antegrade enema program (or switching from one enema program to the other) * English or Spanish speaking/literate Exclusion Criteria: \- Other types of spinal dysraphism (e.g., lipomyelomeningoce…
Contacts

Josephine Hirsch

312-227-6076

jahirsch@luriechildrens.org

CONTACT

Ilina Rosoklija

312-227-6409

irosoklija@luriechildrens.org

CONTACT